By Shubhangi Vaidya
The booklet explores the lived fact of parenting and taking good care of young children with autism in modern city India. it really is in line with a qualitative, ethnographic examine of households of kids with autism as they negotiate the difficult terrain of picking out their baby s incapacity, acquiring a analysis, having access to acceptable providers and their on-going efforts to come back to phrases with and make feel in their baby s certain subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mother and father, siblings and grandparents and the community to this advanced and infrequently tremendous not easy .
The publication tackles head at the sombre query, what's going to take place to the kid after the fogeys are long past ? It additionally significantly examines the position of the kingdom, civil society and felony and institutional frameworks in position in India and undertakes a case examine of motion for Autism ; a Delhi-based NGO organize by means of mom and dad of youngsters with autism. This publication additionally attracts upon the writer s personal engagement along with her baby’ s incapacity and hence lends an authenticity born out of lived event and in-depth figuring out. it's a beneficial addition to the literature within the sociology of the kin and incapacity reviews.
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Extra info for Autism and the Family in Urban India: Looking Back, Looking Forward
All 14 boys and 6 girls were in receipt of educational interventions. The majority attended special schools or centres; only one child who was diagnosed with Asperger’s Syndrome attended a ‘regular’ school. To protect the identities of the families and ensure conﬁdentiality, some biographical details have been slightly altered and pseudonyms used throughout.
Thus, it emerged from an unknown disorder in the 1940s to a marginal phenomenon in the 1980s to a very common diagnosis in many parts of the world today where it is even perceived as an ‘epidemic’ of sorts. Its major cultural presence in highly industrialized societies like America has been analysed by Straus as reflecting in a pathological form the very attributes that the culture values, namely autonomous individuality. In its extreme, pathological form this translates into intense solitude and isolation and a loss of community.
An autism diagnosis, on the other hand, would impugn the family and damage marriage prospects of other family members because of its genetic and life-long nature. As in India, “…what happens to the child happens also to the mother, and therein lies her stigma. If he is socially disabled, she is as well” (Grinker 243). To understand the predicament of the autistic child and his/her family, Grinker draws attention to the intense pressures of the Korean educational system or “education fever” (p. 246) which reflects the desire of the huge Korean middle class to achieve prestige and status through the educational attainments of their children.